The Chemo Update

There's so much to write still but we'll start with the big news.

The guess of our oncology team at this point is that Isaac WON'T NEED CHEMOTHERAPY!

I've known this for close to five hours and just typing that out brings another wave of emotions through my body.  This is not a certainty, but they're betting that he gets to skip it completely.  Tears have flowed many times in the last twelve days.  That's the hardest I've cried out of joy.  My son was spared.  Lord thank you for your mercy!  In the same breath I try to reel myself back in.  There's still a chance he needs chemo.  The doctor is giving it 15-20%.  Lab tests will be coming back next week and one of the things they're testing for is whether the cells are Heterozygous or Homozygous.  We want Heterozygous.  If that comes back in the clear then the national guidelines say that no chemo is needed.

When we started this process we were given a 1% chance of not needing it, and that's only because they knew we had found it early.  As the days have progressed we kept seeing signs pointing towards not needing chemo but our doctors held firm to there original stance.  "He's going to need chemo, you just need to be preparing for that.  It's for his sake and for your sake as well, we don't want relapse."  For the most part we took that at face value, but the thought was always tickling in the back of the mind.  The whole Dumb and Dumber "one in a million...so you're saying there's a chance!"

It's late and I want to crawl into my own bed so I'll just leave it at that.  I still have a world of medical updates to give you all that I'm so excited to share.  But in the meantime please keep praying for our son and that his tumor would be full of so many heterozygous cells it's not even funny!

We have been lifted up by an army.  You all have been mighty warriors and we are so grateful.


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